On May 12, 2023, the National Institute for Health and Care Excellence (NICE) will be hosting an event titled “Delivering Together: New NICE Guidelines for ME/CFS”. This event aims to provide an overview of the updated guidelines for the diagnosis and management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).

The event will be hosted by Dr. Paul Chrisp, Director of the Centre for Guidelines at NICE, and will feature several expert speakers in the field of ME/CFS. The speakers will include:

  • Dr. Luis Nacul, Director of the CureME Biobank and ME/CFS Epidemiology and Genomics Alliance (MEGA) research group.
  • Dr. Alastair Miller, Consultant Neurologist at NHS Greater Glasgow and Clyde.
  • Clare Ogden, CEO of the ME Association.

The event will begin with an introduction from Dr. Chrisp, who will emphasize the importance of the new guidelines in improving the diagnosis and management of ME/CFS. He will explain that the guidelines were developed based on the latest scientific evidence and were created in consultation with patients, carers, and healthcare professionals.

Dr. Nacul will then give a presentation on the epidemiology and diagnosis of ME/CFS. He will explain that ME/CFS is a complex and debilitating illness that affects around 250,000 people in the UK. He will also highlight the challenges in diagnosing ME/CFS, such as the lack of objective diagnostic tests and the overlap of symptoms with other conditions.

Next, Dr. Miller will discuss the management of ME/CFS. He will emphasize the importance of a holistic approach that addresses the physical, psychological, and social aspects of the illness. He will also highlight the need for individualized management plans that take into account the patient’s preferences and circumstances.

Finally, Clare Ogden will share her personal experience of living with ME/CFS and discuss the importance of patient advocacy in improving the diagnosis and management of the illness.

Overall, the “Delivering Together: New NICE Guidelines for ME/CFS” event will provide valuable insights into the latest guidelines for the diagnosis and management of ME/CFS. The event will emphasize the importance of a patient-centered approach that takes into account the individual needs and circumstances of each patient. It is hoped that the new guidelines will help to improve the lives of those living with ME/CFS and increase awareness of the illness among healthcare professionals.

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